This study is funded by an Early Career Researcher Grant to Dr. Bronwyn Hemsley to pilot the method and analysis phases of a larger project submitted to NHMRC – called
Charting the course for good healthcare:
The Personally Controlled Electronic Health Record (PCEHR) and young adults with communication disabilities
This sub-study now has full ethical approval of the Human Research Ethics Committee of the University of Newcastle, and is under consideration by the Cerebral Palsy Alliance.
It involves interviewing 5 young adults with cerebral palsy about their health information at home. More information about the project will be posted here when ethical approval is obtained.