This study is funded by an Early Career Researcher Grant to Dr. Bronwyn Hemsley to pilot the method and analysis phases of a larger project submitted to NHMRC – called
Charting the course for good healthcare:
The Personally Controlled Electronic Health Record (PCEHR) and young adults with communication disabilities
UPDATE: This project now has ethical approval of the University of Newcastle
This sub-study now has full ethical approval of the Human Research Ethics Committee of the University of Newcastle, and is under consideration by the Cerebral Palsy Alliance.
It involves interviewing 5 young adults with cerebral palsy about their health information at home. More information about the project will be posted here when ethical approval is obtained.
Communication Disability, Safety, and Digital Health Research 
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