5. Blog

#HelloMyNameIs: A call for new research

In 2013, Kate Granger (@GrangerKate) (1981 – 2016), in response to her own health care experience as a cancer patient, launched the #HelloMyNameIs social media campaign with this tweet. From that point onwards, Kate (with her insights as a consultant medical officer and as a patient) and her husband Chris Pointon @PointonChris campaigned strongly to change... Continue Reading →

Validation of choking and pneumonia risk assessments for adults with IDD

Article title: Validation of the Choking Risk Assessment and Pneumonia Risk Assessment for adults with Intellectual and Developmental Disability (IDD) Aims: This study aimed to develop and validate the Choking Risk Assessment (CRA) and Pneumonia Risk Assessment (PRA) tools to differentiate adults with Intellectual and Developmental Disabilities (IDD) who were at high risk of choking... Continue Reading →

The business value of the My Health Record

Article Title: Assessing the business value of Australia’s national e-health Solution Aims and method: This study involved semi-structured interviews with key stakeholders of My Health Record (i.e., users, healthcare providers, government representatives and e-Health experts). The project was underpinned by a systematic review of archival records, documents, and online resources. Results: An analysis of the... Continue Reading →

Valuing patients’ use of My Health Record to increase adoption in rural Australia

Article title: Avoiding failure for Australia’s digital health record: the findings from a rural e-health participatory research project Aims and method: This qualitative research aimed to examine the experiences of people aged over 40, their family members, and health promotion officers of using the My Health Record. The study involved interviews and focus groups  over... Continue Reading →

Patient perspectives on a personally controlled e-health record in regional Australia

Article title: Patient perspectives on a personally controlled electronic health record used in regional Australia: ‘I can be like my own doctor’ Aims and method: This qualitative study explored patients’ experiences and perspectives of using a locally developed personally controlled e-health record in an Australian health service. Results: The 12 participants described two main interdependent... Continue Reading →

The health literacy demands of electronic personal health records

Article title: The health literacy demands of electronic personal health records (e-PHRs): an integrative review to inform future inclusive research. Aims: This review aimed to integrate findings in peer-reviewed research to understand the health literacy demand imposed by electronic personal health records (ePHRs) for both patients and providers. The findings were integrated using a synthesis... Continue Reading →

End 2015 wrap: 20 projects in progress through 2016

20 Communication Disability Projects (Analysis or Writing Up!) 2015-16 Tweet Reach: Twitter for people with communication disability project Hemsley, B1., (with Palmer, S2., Dann, S3., & Balandin, S2.) 1DECRA The University of Newcastle, Australian Research Council Discovery Early Career Researcher Award (Mar 2014-Mar 2017) Advisors 2Deakin University, 3Australian National University Twitter data paper (UON) published.... Continue Reading →

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