5. Blog

Inclusion of People with Communication Disability in Twitter

Bronwyn Hemsley, Stuart Palmer, and Babak Abedin have been working on Twitter research, and have made several discoveries relevant to determining a metric for measuring the inclusion of people with communication disability in Twitter. Research publications related to their work are listed here. Abedin, B. (2018). Why social media are more like chocolate than cigarettes.... Continue Reading →


History and Ongoing Challenges of Australian e-Health Record Systems

Article Title: National electronic health record systems as ‘wicked projects’: The Australian experience Aims & Method: This review of public policy initiatives aimed to identify and discuss why attempts to implement electronic health record systems at a national scale frequently run into trouble. It also examined why lessons from the past seemingly do not inform... Continue Reading →

Usability and E-health Literacy Demands of Australia’s My Health Record

Article Title: The E-health Literacy Demands of Australia’s My Health Record: A Heuristic Evaluation of Usability Aims and Method: To evaluate the usability of components of Australia’s My Health Record and its information website. A heuristic evaluation method outlined in the US Office of Disease Prevention and Health Promotion’s Health Literacy Online Checklist was applied.... Continue Reading →

Consumer-Facing Online Information about MyHR

Article Title: A Content Analysis of the Consumer-facing Online Information about My Health Record: Implications for Increasing Knowledge and Awareness to Facilitate Uptake and Use   Aims: In this study, the authors aimed to analyse the quality of consumer-facing information about the Australian MyHR available on the MyHR website and other websites in Australia. Quality... Continue Reading →

Health Information Infrastructure in Supported Accommodation in Australia

Article Title: Health Information Infrastructure for People with Intellectual and Developmental Disabilities (I/DD) Living in Supported Accommodation: Communication, Co-Ordination and Integration of Health Information Aims/Methods: This scoping review examined research, policies and health documents on the use of health documentation for people with Intellectual and Developmental Disabilities (I/DD) living in supported accommodation in Australia. It... Continue Reading →

#HelloMyNameIs: A call for new research

In 2013, Kate Granger (@GrangerKate) (1981 – 2016), in response to her own health care experience as a cancer patient, launched the #HelloMyNameIs social media campaign with this tweet. From that point onwards, Kate (with her insights as a consultant medical officer and as a patient) and her husband Chris Pointon @PointonChris campaigned strongly to change... Continue Reading →

Validation of choking and pneumonia risk assessments for adults with IDD

Article title: Validation of the Choking Risk Assessment and Pneumonia Risk Assessment for adults with Intellectual and Developmental Disability (IDD) Aims: This study aimed to develop and validate the Choking Risk Assessment (CRA) and Pneumonia Risk Assessment (PRA) tools to differentiate adults with Intellectual and Developmental Disabilities (IDD) who were at high risk of choking... Continue Reading →

The business value of the My Health Record

Article Title: Assessing the business value of Australia’s national e-health Solution Aims and method: This study involved semi-structured interviews with key stakeholders of My Health Record (i.e., users, healthcare providers, government representatives and e-Health experts). The project was underpinned by a systematic review of archival records, documents, and online resources. Results: An analysis of the... Continue Reading →


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