Article title: Patient perspectives on a personally controlled electronic health record used in regional Australia: ‘I can be like my own doctor’ Aims and method: This qualitative study explored patients’ experiences and perspectives of using a locally developed personally controlled e-health record in an Australian health service. Results: The 12 participants described two main interdependent... Continue Reading →
The health literacy demands of electronic personal health records
Article title: The health literacy demands of electronic personal health records (e-PHRs): an integrative review to inform future inclusive research. Aims: This review aimed to integrate findings in peer-reviewed research to understand the health literacy demand imposed by electronic personal health records (ePHRs) for both patients and providers. The findings were integrated using a synthesis... Continue Reading →
Legal, ethical and rights issues in adoption of My Health Record
Article Title: Legal, ethical, and rights issues in the adoption and use of the “My Health Record” by people with communication disability in Australia Aims and method: The aim of this review was to explore the legal, ethical, and rights issues surrounding the use of the Australian My Health Record by people with communication disability.... Continue Reading →
#MyHealthRecord and health literacy: Considering the healthcare recipient perspective
In March 2017 we released a Conversation EDU article to ask 'Why aren't more people using the My Health Record' . At the time, final touches were being put on two journal articles, one detailing the health literacy demands of My Health Record itself, and the other examining the health literacy demands of online consumer facing... Continue Reading →
End 2015 wrap: 20 projects in progress through 2016
20 Communication Disability Projects (Analysis or Writing Up!) 2015-16 Tweet Reach: Twitter for people with communication disability project Hemsley, B1., (with Palmer, S2., Dann, S3., & Balandin, S2.) 1DECRA The University of Newcastle, Australian Research Council Discovery Early Career Researcher Award (Mar 2014-Mar 2017) Advisors 2Deakin University, 3Australian National University Twitter data paper (UON) published.... Continue Reading →
PCEHR-FIT (Foundation Implementation Translation) [Pre-Conf Workshop at #isdmisehc2015]
PCEHR-FIT: Foundation, Implementation, and Translation: Including Adults with Communication Disabilities in PCEHR Bronwyn Hemsley (1), Andrew Georgiou (2), Shaun McCarthy (1), Susan Balandin (3), Rob Carter (3), Sophie Hill (4), Shaun McCarthy (1) , Isabel Higgins (1), and Paulette van Vliet (1) 1 The University of Newcastle, NSW, Australia 2 Macquarie University, NSW, Australia 3... Continue Reading →
#PCEHResearch Event at HMRI Newcastle 27th Nov 2014
PCEHR Event on 27 Nov 2014 at HMRI Flyer All are welcome to register for free for this public information event about the Australian 'Personally Controlled Electronic Health Record' and its use by people with communication disabilities - particularly older children and young adults who are in transition from child to adult health services, and... Continue Reading →
New NHMRC Project Grant Awarded on the PCEHR in Australia – Communication Disability
In October 2013 the Australian Government announced awarding of a 3-year project grant NHMRC to Dr. Bronwyn Hemsley, Prof. Susan Balandin, A/Prof. Andrew Georgiou, and Dr. Sophie Hill (Chief Investigators) and associate investigators, entitled "The Personally Controlled Electronic Health Record: Charting the Course for Successful Healthcare Transitions for Young Adults with Communication Disabilities." This 3... Continue Reading →
New Pilot Funds Granted: The PCEHR and People with Communication Disability
This is the title of our new Pilot Project! Charting the course for safe care: The Personally Controlled Electronic Health Record (PCEHR) and adults with communication disabilities. Grant Awarded by: The University of Newcastle Amount of Grant: approx $10K Named Grant Awardees - Dr Bronwyn Hemsley and Prof Paulette van Vliet (The University of Newcastle... Continue Reading →
Communication Disability, Safety, and Digital Health Research 